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Deborah Kan
Created on March 13, 2024
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Transcript
Introduction
Carrier of an Alzheimer's risk gene
Living with early-onset Alzheimer's
Michele Castro
Kim Reid
Two families share their stories
Alzheimer's Disease: Generations of Impact
Hear Michele Speak
Hear Kim Speak
Michele Castro, PSEN1 carrier
listen
Click to learn more about
Making Memories
Advocacy
Diversity and Dementia
A Latino family living with an 'Alzheimer's gene'
The PSEN1 Gene
"Within our community, a lot of people don’t want to get tested (Alzheimer's) The Hispanic community is very loving, caring, but they can also be very private. We don’t want people to know our business."
Click here to explore THE CASTRO Family Tree
Michele Castro
Click here to Explore THE REID Family Tree
Kim and Robert Reid
Robert Reid, Kim's husband, Main Caregiver
Love Story
Listen
Click to learn more about
Christmas Time
Advocacy
Diversity and Dementia
An African American family on living with Alzheimer's
"Historically, because of our lack of healthcare, because our lack of funds to even go to the doctor, those things were not prevalent to us to be able to recognize and to understand. So the more knowledge that we can put out here, “go get checked,” “do this,” “do that.” If they see a black face doing it, they are more apt to, first of all, they can see it can happen to them and also they can do something about it."
Son
Son
Son
Tyler Castro
Joshua Pagan
Joel Castro
AuntDiagnosed with Alzheimer's
Elba Ramos
Click on each person to find out more
Carmelo Castro
Husband
Father
Michele's Family Tree
Step Grandmother
Mercedes GonzalezPerez
Grandfather
Martin Gonzalez Perez
GrandfatherUndiagnosed Dementia
Jacinto Ramos
GrandmotherUndiagnosed Dementia
Maria Dolores Ramos
Raymond Ramos
Chris Castro
Crystal Merritt
Daughter
Michele Castro
No signs of Alzheimer's PSEN1 gene carrier
MotherHad PSEN1 Alzheimer's
Son
Older StepbrotherHad PSEN1 gene
José M. Montalvo
Rosa Belen Gonzalez
Click on each person to find out more
Father Undiagnosed Dementia
Kim's Family Tree
Robert Reid
Husband Main Caregiver
Earl Wilson
Brennan Reid
Brandice Reid
Daughter
Kimberly Reid
Early OnsetAlzheimer's
MotherParkinson's Disease and Lewy body dementia
Son
Younger sister
Tracey (Reid) West
Willie Louise Wilson
Special thanks to Robert Reid and Michele Castro and their families for providing personal photos and videos.
Embedded video: The Journey of Dementia
Meet the Reid Family
Read more on BeingPatient.com
Alzheimer's Disproportionately Affects People of Color
Meet the Castro Family
Kim's daughter, Brandice, reads the yearbook letter from her mom to her dad
Click on image to enlarge
Return to Kim's page
Listen
Kim's Letter to Robert in their High School Yearbook
Tracey West: Signs of my parent's dementia
Listen
Earl Wilson
Kim's father, Earl, was a cross-country truck driver. He was diagnosed with dementia around 2015, a year before his wife, Willie, was diagnosed with Parkinson's and Lewy body dementia. And two years before his daugther Kim was diagnosed with early onset Alzheimer's. Tracey and her husband became full-time caregivers to her parents.
Why Brandice decided to stay home
Listen
Brandice talk about Kim as a mother
Listen
Brandice Reid
Brandice is the oldest child of Kim and Robert. She teaches at an elementary school and lives at home so she can help take care of her mother and support her father as the full-time caregiver. Photos taken by Brennan Reid and the Reid family.
Click to see the recipe
Brennan talks about his mother's "Almost better than anything cake"
Listen
As a photographer, Brennan captures his family's ordinary and special moments.
Michele Castro: Grandmother Maria's Alzheimer's
Listen
Maria D. Rolon
Michele's grandmother, Maria, and her husband lived in Puerto Rico while two of her children moved to New York. She became blind in her late 40s but continued to work around the house. Later, when Maria developed dementia symptoms, her children took turns taking care of her.
Kim grew up in southern Kentucky in a small town called Hopkinsville. Although Kim is currently in the moderate to late stage of early-onset Alzheimer's, she still enjoys spending time with her family and visits her childhood home where her sister, Tracey, currently lives.
Michele and Carmelo developed instant chemistry across the dance floor in New York City. Since then they've been married for more than 25 years. Both had kids from previous marriages but they raised all their children in the same household, making one big blended family.
Rosa with Jose and Michele in New York City
Listen
Michele Castro: Finding out about her mom's diagnosis
Rosa Belen Gonzalez
Michele's mother, Rosa, was born in Aguadilla, Puerto Rico. She met Michele's father in New York and became an active and respected member of the Bronx community. Rosa worked as an administrator for Section 8 housing helping people in her community. Rosa passed away before she turned 60 but it wasn't until Rosa reached the late stages of early onset Alzheimer's that Michele discovered she had the PSEN1 gene.
Michele Castro: Happiest childhood memories
Carmelo Castro: What made Joe special
Crystal Merritt: Taking care of Uncle Joe
José M. Montalvo
José (Joe) had a career as an Emergency Medical Service worker for the FDNY. He worked during the 9-11 World Trade Center attack and aftermath. Diagnosed with early-onset Alzheimer's when he was in his 40s, Joe passed away at 59. His big personality and jovial nature left an impact on his friends and family.
Michele's son, Chris, is a registered nurse and nurse educator. He uses his medical background to help navigate Michele's doctor's appointments. He chose to live 15 mintues away so he can lend hand whenever it is needed. Chris has no blood relation to Michele.
Tracey West: I have three family members with dementia
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Willie Louise Wilson
Kim's mother, Willie, was a factory worker who also worked as a church secretary. She was diagnosed with Parkinson's disease in 2016 and later with Lewy body dementia. Around the same time, Kim was diagnosed with early-onset Alzheimer's. Tracey and her husband moved back into her parents' home to help take care of them.
When Crystal found out her mother has the PSEN1 gene, she was just engaged to be married. Today she cherishes every moment she has with her mother. Crystal isn't sure if she wants to get tested for the PSEN1 gene.
What Michele wants for her husband
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Michele's concerns about Alzheimer's
Michele on the future
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Michele is currently 55 years old and has yet to exhibit symptoms associated with Alzheimer's, but the fact that she carries the PSEN1 gene makes it likely that she will develops Alzheimer's before 65 years old. Her genetic status motivates her to plan for the future. After witnessing how the disease impacted her mother and brother, she hopes to make it easier for her family.
Listen
Tracey West: The first time I noticed Kim's memory loss
Tracey talks about her big sister Kim and what she was like growing up together.
Kim is currently in the moderate to late stages of early-onset Alzheimer's. Robert works from home and is the full-time care partner of Kim. Robert believes that Alzheimer's affects the whole family, but also brings him closer to his wife.
Listen