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Phase 2 - Survey

Maggie

Created on March 19, 2026

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Transcript

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Information for participants

Kia ora! My name is Maggie!

Click for more info

I am a PhD Candidate at Victoria University of Wellington who was diagnosed with ADHD as a young adult. This is my supervisory team:

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Information for participants

Tēnā koe, you are invited to take part in this research. Please read the information on the following pages or watch this short video before deciding if you want to take part in this survey or not.

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He aha te whāinga mō tēnei rangahau / What is the aim of the project?

During my PhD, I am hoping to create holistic research and resources that talk about challenges AND strengths of how young adults experience their ADHD in several areas of wellbeing. This survey was informed by participants who took part in phase 1.

This research has been approved by the Victoria University of Wellington Human Ethics Committee [HEC: 40556].

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Ka pēhea tō āwhina mai / How can you help?

This survey will take most people 15 minutes long and will cover topics such as:

Click me!

Added topics

Original topics

Entertainment

Social Justice

Spirituality

Responsibility to others

Added Topics of Interest*

*Topics that study 1 participants said were important

Employment

Education

Housing

Social Connections

Perceptions of ADHD

Healthcare

Mental Health

Original Topics of Interest*

Diagnosis

*Topics that I was originally investigating

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Ka ahatia ngā kōrero ka tukuna mai / What will happen to the information you give?

We will store your data on a password-protected drive run by Victoria University called SoLAR. Only our team can access your deidentified data and it will not be analysed using AI models. This data will be kept for 30 years and will help develop future resources outside of my current PhD work.

New link with info

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Ka ahatia ngā kōrero ka tukuna mai / What will happen to the information you give?

If I am unable to get a job at a university, I have asked Associate Professor. Terry Fleming (who also is part of the ADHD community) to be the caretaker of your data. She will continue to follow what I have promised in this information sheet, but I will still be the Primary Investigator working with your data.

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Ka ahatia ngā kōrero ka tukuna mai / What will happen to the information you give?

At the end of the survey, you will have the option to consent to Researchers outside our team using your anonymous data. This is to help support research from and about underrepresented communities. They would have to meet certain requirements if they used your data.

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He aha ngā hua o te rangahau / What will the project produce?

Creating accessible research is important to me, so on top of the research publications that I will produce in my PhD thesis, the information you provide in the survey will also be used to develop: • Social media posts • Community resources• Reports• Podcasts• Blog posts• Hui

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Mehemea ngā pātai, he raruraru rānei, me whakapā ki a wai / If you have any questions or problems, who can you contact?

If you have any questions, either now or in the future, you can contact me via email or attend one of my drop-in Zoom sessions to ask questions.

He kōrero whakamārama mō HEC / Human Ethics Committee information if you have any concerns about the ethical conduct of the research you may raise this with the HEC Convenor, Te Herenga Waka—Victoria University of Wellington

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Things to be aware of during gamified survey

Unfortunately, there are certain limitations with using Genially. I have added different symbols along the way to help.

This indicates questions where you can't change your answer. You will get a chance to repeat these questions at the end of each section.

Some questions require you to submit your answer to move on. Click these buttons to skip those questions

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Things to be aware of during gamified survey

Some questions will unlock different paths depending on how you answer. You will see this symbol when you receive those questions

You need to clear your cookie history after the survey so your alias is not still associated with your device. I will remind you again at the end of the survey.

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I want to do the basic survey instead

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Karakia

Diagnosis

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Answering second questions on a page will take you to the next page, so you don't have to push next everytime!

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There is a lack of ADHD research exploring how people's identities impact their experiences of ADHD. Take a moment to reflect before you move on:
What are some identities that are important to who you are? Some examples of these could be ethnicity, gender, religion, sexuality, or socioeconomic status.

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Before you complete this section, are there any questions you would like the option to change? Click on the button below to change your answers:

Diagnosis

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Identity

Diagnosis

Q13: How do you feel about these ADHD terms?

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Q13: How do you feel about these ADHD terms?

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Q13: How do you feel about these ADHD terms?

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Q13: How do you feel about these ADHD terms?

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Q13: How do you feel about these ADHD terms?

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Q15: Do you believe the following about your ADHD?

Overall, being ADHD has very little to do with how I feel about myself

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Q15: Do you believe the following about your ADHD?

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Q15: Do you believe the following about your ADHD?

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Q15: Do you believe the following about your ADHD?

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Q15: Do you believe the following about your ADHD?

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Q15: Do you believe the following about your ADHD?

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Q15: Do you believe the following about your ADHD?

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Q15: Do you believe the following about your ADHD?

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Q16: In what ways you do think your ADHD benefits you compared to people who don’t have ADHD?

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Q17: In what ways you do think your ADHD makes things more challenging compared to people who don’t have ADHD?

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Before you complete this section, are there any questions you would like the option to change? Click on the buttons to change your answers:

Labels

Identity

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Diagnosis

Identity

Wellbeing

Q18: Taking everything into consideration, during the past week how satisfied have you been with your………?

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Q18: Taking everything into consideration, during the past week how satisfied have you been with your………?

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Q18: Taking everything into consideration, during the past week how satisfied have you been with your………?

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Q18: Taking everything into consideration, during the past week how satisfied have you been with your………?

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Q18: Taking everything into consideration, during the past week how satisfied have you been with your………?

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Long wellbeing section

Tell me about your wellbeing, and how your ADHD relates?

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How relevant is this to you right now?

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How relevant is this to you right now?

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How relevant is this to you right now?

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How relevant is this to you right now?

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How relevant is this to you right now?

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How relevant is this to you right now?

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To what extent does your ADHD NEGATIVELY affect this area of your life?

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To what extent does your ADHD NEGATIVELY affect this area of your life?

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To what extent does your ADHD NEGATIVELY affect this area of your life?

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To what extent does your ADHD NEGATIVELY affect this area of your life?

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To what extent does your ADHD NEGATIVELY affect this area of your life?

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To what extent does your ADHD NEGATIVELY affect this area of your life?

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To what extent does your ADHD POSITIVELY affect this area of your life?

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To what extent does your ADHD POSITIVELY affect this area of your life?

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To what extent does your ADHD POSITIVELY affect this area of your life?

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To what extent does your ADHD POSITIVELY affect this area of your life?

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To what extent does your ADHD POSITIVELY affect this area of your life?

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To what extent does your ADHD POSITIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD POSITIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD POSITIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD POSITIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD POSITIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD POSITIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD POSITIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD NEGATIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD NEGATIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD NEGATIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD NEGATIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD NEGATIVELY affect this area of your life?

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Before you were 18, to what extent did your ADHD NEGATIVELY affect this area of your life?

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Before you complete this section, are there any questions you would like the option to change? Click on the buttons to change your answers:

Wellbeing Relevance

Life Satisfaction

Negative Wellbeing Now

Positive Wellbeing Now

Past Positive Wellbeing

Past Negative Wellbeing

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Diagnosis

Diagnosis

Support

Identity

Identity

Wellbeing

Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?

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Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?

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Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?

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Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?

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Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?

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Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?

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Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?

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Before you complete this section, are there any questions you would like the option to change? Click on the buttons to change your answers:

Support

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Diagnosis

Diagnosis

Demographics

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Identity

Identity

Wellbeing

Demographics

I am now going to ask you some demographic questions. These are so I can try to get a diverse range of responses from the community. You do not have to answer anything you are uncomfortable with.

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Please list them in order of preference

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Please list them in order of preference

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Your answer will be locked in when you click this button

Contact information

You will now be asked to consent to your personal information being used. If you want to stay anonymous, you will be given the chance to enter a different email to the being used for your alias.

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What personal information are we asking for and how will it be used?

You may stay anonymous:

You can go into the draw to win a $50 gift card:

You can take part in the same survey at a future date:

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If you are interested in taking part in this survey again in the next couple of years, but want to stay anonymous, I am needing you to please answer a few questions. If you could please follow the link below to provide your email and to fill out the questions to the form. You then need to return to this survey to respond to the same questions on the next page so we can link you to your responses from this survey

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What month were you born in? What year were you born?

Before you complete this section, are there any questions you would like the option to change? Click on the buttons to change your answers:

Migrant/Refugee

Sex

Age/Gender

Religion/ Spirituality

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The End!!

Demographics

Support

Identity

Identity

Wellbeing

Karakia

Diagnosis

Thank you for taking the time to participate in my survey, we really appreciate it! Your responses to this survey will go on to create more holistic research about young adults with ADHD in Aotearoa.

If you accidentally clicked no to the consent question at the start, click this button. It will take you to a duplicate version of this survey.

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If anything in the survey was upsetting for you and you wish to seek support, you can contact the following service: • Need to talk? (1737 – free call or text) • The Depression Helpline (0800 111 757) • Healthline (0800 611 116) • Lifeline (0800 543 354) There is also an optional lighthearted game that I made, included at the end of this survey. I created this so that you could have a bit of fun after talking about some pretty serious topics.

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For those of you who are interested in hearing more about my research as I progress, or have feedback about my surveys, you can follow either my newsletter or my professional Instagram page. Mā te wā Maggie, Marc, Terry, and Gloria

Take me to the game

Game placeholder

Remember to clear your cookies!

Contact Details

(These will be available at the end of the survey as well)

Questions from this section
Q15 Do you believe the following about your ADHD..
Click me!
Response Options
Statements
  1. Overall, being ADHD has very little to do with how I feel about myself
  2. My ADHD is a disability
  3. My ADHD is a superpower
  4. In general, being ADHD is an important part of my self-image
  5. My ADHD is central to who I am
  6. My destiny is tied to the destiny of other ADHD people
  7. My ADHD is one part of my wider personality
  8. Being ADHD is unimportant to my sense of what kind of person I am
  9. My ADHD enhances my existing personality
  10. I have a strong sense of belonging to ADHD people
  11. My ADHD is just part of natural human diversity
  12. I have a strong attachment to other ADHD people
  13. Having ADHD gives me advantages over others without ADHD
  14. Being ADHD is an important reflection of who I am
  15. Having ADHD disadvantages me compared to others without ADHD
  16. Being ADHD is not a major factor in my social relationships

Strongly Agree

Agree

Somewhat Agree

Neither agree or disagree

Somewhat Disagree

Disagree

Strongly Disagree

Questions from this section
Q33 Do you consider yourself a religious person?
  • Yes
  • No
Q34 Do you consider yourself a spiritual person?
  • Yes
  • No
  • Don't know
  • Prefer not to say
Clck on the questions to reveal and hide response options!
Questions from this section
Q30 Did you come to Aotearoa New Zealand as a refugee, asylum seeker, or economic migrant?
  • No, I was born here
  • Yes, as a refugee
  • Yes, as an asylum seeker
  • Yes, as an economic migrant
Questions from this section
Q18 Taking everything into consideration, during the past week how satisfied have you been with your………?
Click me!
Response Options
Statements
  1. …..physical health?
  2. …..mood?
  3. …..work?
  4. …..household activities?
  5. …..social relationships?
  6. …..family relationships?
  7. …..leisure time activities?
  8. …..ability to function in daily life?
  9. …..economic status?
  10. …..your vision in terms of ability to do work or hobbies?*
  11. …..overall sense of well being?
  12. …..medication? (If not taking any, check here and leave item blank.)
  13. …..How would you rate your overall life satisfaction and contentment during the past week?

Very Poor

Poor

Fair

Very Good

Good

Researchers who want to use your data will need to commit to

⦁ To not use your data in AI tools ⦁ To keep your data in the SoLAR drive⦁ Show their commitment to Te Tiriti o Waitangi ⦁ Have a significant portion of their findings dedicated to wider societal factors to prevent solely deficit-based framings ⦁ Communicating their findings back to the ADHD community in the form of a hui and resource

Questions from this section
Q23 How old are you?
  • 18
  • 19
  • 20
  • 21
  • 22
  • 23
  • 24
Questions from this section
Before you were 18, to what extent did your ADHD POSITIVELY affect this area of your life?
Click me!
Response Options
Statements
  1. Housing
  2. Employment
  3. Spirituality
  4. Entertainment
  5. Education
  6. Access to healthcare
  7. Mental Health
  8. Social connections
  9. Social justice
  10. Responsibility to others
  11. Other (please specify):

No effect

Minor effect

Neutral

Major effect

Moderate effect

Questions from this section
How relevant is this to you right now?
Click me!
Response Options
Statements
  1. Housing
  2. Employment
  3. Spirituality
  4. Entertainment
  5. Education
  6. Access to healthcare
  7. Mental Health
  8. Social connections
  9. Social justice
  10. Responsibility to others
  11. Other (please specify):

Not at all relevant

Slightly relevant

Somewhat relevant

Extremely relevant

Moderately relevant

Contact Details

(These will be available at the end of the survey as well)

He kōrero whakamārama mō HEC / Human Ethics Committee information

If you have any concerns about the ethical conduct of the research you may raise this with the HEC Convenor, Te Herenga Waka—Victoria University of Wellington, by: • By emailing human-ethics@vuw.ac.nz • Phoning the University’s Service Centre on 0800 04 04 04

If you would like to go into the draw to win a $50 gift card:

Personal details will be collected only for those who wish to enter the prize draw/request a copy of the final report. All personal details will be received separately from the survey data and will be held in confidence. This ensures that your answers to the survey questions will not be linked to your identity.

Closing Karakia

A karakia for self regulation in case my survey brought up any strong emotions

Hā ki roto Hā ki waho Kia tau te mauri e kōkiri nei I ngā piki me ngā heke Ko te rangimarie tāku e rapu nei Tihei mauri ora!

Breathe in Breathe out Settle the mauri that stirs inside of me Through the ups and downs It is peace that I seek

Questions from this section
Before you were 18, to what extent did your ADHD NEGATIVELY affect this area of your life?
Click me!
Response Options
Statements
  1. Housing
  2. Employment
  3. Spirituality
  4. Entertainment
  5. Education
  6. Access to healthcare
  7. Mental Health
  8. Social connections
  9. Social justice
  10. Responsibility to others
  11. Other (please specify):

No effect

Minor effect

Neutral

Major effect

Moderate effect

Questions from this section
Q22 In the last 12 months, have you gone to or used any of the following for help or advice for your ADHD and how helpful were they?
Click me!
Response Options
Statements
  1. A friend or peer
  2. A parent or other adult in your family
  3. Your family doctor/GP
  4. A counsellor
  5. A nurse
  6. A phone line
  7. Social media
  8. A website with ADHD specific information such as Additude
  9. An app or therapeutic tool such as Finch
  10. A Youth One Stop Shop
  11. Financial support for a diagnosis (such as ACFB)
  12. Someone/thing else (please specify):

Not at all helpful

Slightly Helpful

Somewhat Helpful

Extremely Helpful

Very Helpful

Questions from this section
To what extent does your ADHD NEGATIVELY affect this area of your life?
Click me!
Response Options
Statements
  1. Housing
  2. Employment
  3. Spirituality
  4. Entertainment
  5. Education
  6. Access to healthcare
  7. Mental Health
  8. Social connections
  9. Social justice
  10. Responsibility to others
  11. Other (please specify):

No effect

Minor effect

Neutral

Major effect

Moderate effect

Questions from this section
Q13 How do you feel about these ADHD terms?
  1. ADHDer
  2. Aroreretini
  3. Person with ADHD
  4. Person living with ADHD
  5. Disabled
  6. Neurodivergent
  7. Neurospicy
  8. No Label
  9. Other (please specify)

Extremely negative

Somewhat Negative

Neither positive nor negative

Extremely Positive

Somewhat Positive

Photo by ....

Opening Karakia

This image is based in Haast, and the river is called Awarua. So I have chosen a karakia by the local iwi, Kāi Tahu, called Ka Koroki Te Manu.

Ka Haea te ata, ka Hāpara te ata Ka korokī te manu Ka wairori te kutu Ko te ata nui, ka horaina Ka Taki te umere, He po, he po, he ao ka awatea.

As the dawn breaks and we hear the birds call, we move from the time of darkness to the new era of enlightenment. Each new dawn enables us to embrace new knowledge, to be inspired by the possibilities that rise in front of us.

If you would like to take part in the same survey at a future date:

After my PhD, I am hoping to run this survey again which will help create research looking at patterns across time to develop a greater understanding of young adults with ADHD. If this is something you are interested in, you will be asked questions in the survey that can link you to your contact details provided in a separate form, if you want to provide a different email to the one you're using for this survey. Your contact information will NOT be given to Researchers outside of the research team and you can opt out even if you have given us your email. Regardless of which option you decide when taking part in the survey, your identity will not be revealed in any reports, presentations, or public documents.

Questions from this section
Q25 What was your sex assigned at birth?
  • Male
  • Female
  • Indeterminate
  • Prefer not to say
Q26 Are you aware if you were you born with a variation of sex characteristics (otherwise known as an intersex variation)?
  • Yes
  • No
  • Don't know
  • Prefer not to say
Clck on the questions to reveal and hide response options!
Questions from this section
Q3 When were you formally diagnosed with ADHD?
Q6 Are you aware of the new law changes that allow for General Practitioners and Nurse Prescribers to diagnose ADHD?
  • 0-5
  • 6-10
  • 11- 15
  • 16-20
  • 21-24
  • Yes
  • No
  • Unsure
Q7 If you aren't formally diagnosed with ADHD, is that something you want?
  • Yes
  • No
  • Unsure
Clck on the questions to reveal and hide response options!

If you want to be anonymous

This means that nobody, including the Researchers, will be aware of your identity. By answering it, you are giving us consent to use your responses in this research.Your answers will remain completely anonymous and unidentifiable. Once you submit the survey, it will be impossible to retract your answer. Please do not include any identifiable information in your responses.

Questions from this section
To what extent does your ADHD POSITIVELY affect this area of your life?
Click me!
Response Options
Statements
  1. Housing
  2. Employment
  3. Spirituality
  4. Entertainment
  5. Education
  6. Access to healthcare
  7. Mental Health
  8. Social connections
  9. Social justice
  10. Responsibility to others
  11. Other (please specify):

No effect

Minor effect

Neutral

Major effect

Moderate effect