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[DT-0004] Who Treats Desmoid Tumors? Meet Your Care Team

MyHealthTeam

Created on March 13, 2026

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Transcript

Pathologist

Sarcoma specialist

Surgeon

Advanced practice providers

Radiation oncologist

Medical oncologist

See Continuing Care Team >

Primary Care Provider

Other team members

Nurses

Community Oncologist

See Specialist Care Team >
Specialist Care Team

Sarcoma specialist

A sarcoma specialist treats sarcomas — rare cancers that form in muscle, blood vessels, nerves, and fat (soft or connective tissue). These doctors also treat desmoid tumor, which can affect the same tissues. A sarcoma specialist may be a medical, radiation, or surgical oncologist with extra training or experience in sarcomas.

Specialist Care Team

Medical oncologist

A medical oncologist treats cancers and some other tumors using therapies such as chemotherapy, immunotherapy, hormone therapy, or targeted therapy. This doctor may lead your care team, but depending on your situation, another specialist may take that role.

Specialist Care Team

Radiation oncologist

A radiation oncologist uses radiation therapy to treat cancer and other tumors. If radiation therapy is an option for you, this doctor will plan and oversee your desmoid tumor treatment.

Specialist Care Team

Surgeon/surgical oncologist

A surgeon is the specialist who removes desmoid tumors when surgery is appropriate. Surgeons may also perform biopsies (taking small tissue samples) to help with diagnosis. Surgery is no longer the first treatment recommended for most desmoid tumors, but it may still be an option based on your tumor’s location and other factors. It can help to see a surgeon with experience in treating desmoid tumor. The decision to surgically remove a desmoid tumor should be made by a multidisciplinary team.

Specialist Care Team

Pathologist

A pathologist diagnoses disease by examining tissue under a microscope. They may review a biopsy to confirm a desmoid tumor diagnosis. A pathologist with experience in soft tissue tumors can help ensure an accurate diagnosis. You may not meet your pathologist, as these doctors often work behind the scenes.

Specialist Care Team

Advanced practice providers

Nurse practitioners and physician assistants may also be part of your care team. They collaborate with doctors and help with diagnosis, treatment, and ongoing care.

Continuing Care Team

Nurses

Nurses are an important part of your healthcare team. They support your care by:

  • Giving certain treatments
  • Coordinating care with other team members
  • Teaching you and your family about desmoid tumor

Continuing Care Team

Primary care provider

Your primary care provider supports your overall health, including managing other conditions. It’s important to keep seeing them while receiving care for desmoid tumor.

Continuing Care Team

Community oncologist

If you don’t live near a sarcoma center, your local oncologist may work with desmoid tumor specialists to create your care plan. This approach can help you receive care closer to home and reduce travel. Your desmoid tumor care team and local healthcare provider can help explain how this may work for you.

Continuing Care Team

Other team members

Pharmacists, social workers, physical therapists, mental health professionals, and others may also be part of your team. They can help with treatment, support your quality of life, and manage side effects.