What people see
Slowed growth
Loss of motor abilities
Epilepsy
Loss of communication skills
Repetitive hand movements
Behavioral changes
Abnormal breathing
Cognitive impairment
Unusual eye movements
Scoliosis
Weakened bones
Digestive problems
Sleep disturbances
Depression
Abnormal heart rhythm
Cold hands and feet
Anxiety
What people don’t see
Depression
People with Rett and their families may experience depression.
Digestive problems
Constipation, incontinence, and gastric reflux are common with Rett syndrome.
Learn More
Slowed growth
Head growth slows first, followed by other parts of the body.
Learn More
Cognitive impairment
People with Rett may have trouble thinking, understanding, or learning new things.
Learn More
Behavioral changes
Crying, screaming, laughing, hand-licking, and grabbing hair or clothes are common.
Learn More
Repetitive hand movements
Purposeless hand movements include wringing, tapping, squeezing, or clapping.
Learn More
Anxiety
Anxiety may make it difficult to function socially.
Loss of communication skills
People with Rett experience gradual or sudden loss of the ability to talk.
Learn More
Abnormal heart rhythm
Changes in heart rhythm can be serious and may increase the risk of sudden death.
Learn More
Scoliosis
Rett syndrome includes an increased risk for a sideways curvature of the spine.
Learn More
Weakened bones
Weak bones raise the risk for fractures.
Learn More
Loss of motor abilities
Development slows or stops, and then motor abilities are gradually lost.
Learn More
Abnormal breathing
People with Rett may hold their breath, breathe rapidly, or forcefully blow out air and saliva.
Learn More
Sleep disturbances
Irregular sleep patterns include stopping breathing or waking in the night crying or screaming.
Learn More
Unusual eye movements
Rett syndrome eye movements can include staring, blinking, closing one eye, or avoiding eye contact.
Learn More
Epilepsy
Multiple types of seizures are possible with Rett syndrome.
Learn More
Cold hands and feet
Problems with circulation may cause cold extremities.
Learn More
[RETT-1] Rett Syndrome: What People Don’t See
MyHealthTeam
Created on March 9, 2026
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Transcript
What people see
Slowed growth
Loss of motor abilities
Epilepsy
Loss of communication skills
Repetitive hand movements
Behavioral changes
Abnormal breathing
Cognitive impairment
Unusual eye movements
Scoliosis
Weakened bones
Digestive problems
Sleep disturbances
Depression
Abnormal heart rhythm
Cold hands and feet
Anxiety
What people don’t see
Depression
People with Rett and their families may experience depression.
Digestive problems
Constipation, incontinence, and gastric reflux are common with Rett syndrome.
Learn More
Slowed growth
Head growth slows first, followed by other parts of the body.
Learn More
Cognitive impairment
People with Rett may have trouble thinking, understanding, or learning new things.
Learn More
Behavioral changes
Crying, screaming, laughing, hand-licking, and grabbing hair or clothes are common.
Learn More
Repetitive hand movements
Purposeless hand movements include wringing, tapping, squeezing, or clapping.
Learn More
Anxiety
Anxiety may make it difficult to function socially.
Loss of communication skills
People with Rett experience gradual or sudden loss of the ability to talk.
Learn More
Abnormal heart rhythm
Changes in heart rhythm can be serious and may increase the risk of sudden death.
Learn More
Scoliosis
Rett syndrome includes an increased risk for a sideways curvature of the spine.
Learn More
Weakened bones
Weak bones raise the risk for fractures.
Learn More
Loss of motor abilities
Development slows or stops, and then motor abilities are gradually lost.
Learn More
Abnormal breathing
People with Rett may hold their breath, breathe rapidly, or forcefully blow out air and saliva.
Learn More
Sleep disturbances
Irregular sleep patterns include stopping breathing or waking in the night crying or screaming.
Learn More
Unusual eye movements
Rett syndrome eye movements can include staring, blinking, closing one eye, or avoiding eye contact.
Learn More
Epilepsy
Multiple types of seizures are possible with Rett syndrome.
Learn More
Cold hands and feet
Problems with circulation may cause cold extremities.
Learn More