Welcome!
Welcome to this short story about PKU.Before you start...
This activity includes voiceovers. Please make sure your sound is on and click the speaker icon on each slide to listen. 👉 Click the arrow to begin.
What is PKU?
Hi there! PKU stands for phenylketonuria. It means your body has trouble breaking down part of the protein in food. This part is called phenylalanine or phe for short.
Hi, Doctor. My parents said I have something called PKU. What does that even mean?
You can eat some, but only a small amount. People with PKU need to be careful with how much protein they get from food. To replace the protein you don't get from food, you can take your synthetic protein.
So… I can’t eat protein?
Good question! Protein helps your body grow strong. It builds muscles, helps protect you from illnesses, and helps you recover if you have been unwell.
Why is protein important?
You get some of your protein from your synthetic protein- that is why taking it every day is so important! The rest of your protein comes from food, the amount depends on how many exchanges you are on.
Where do I get my protein from?
There are lots of tasty low-protein foods ! Fruits, veggies, and special low-protein foods. Your dietitian can help you choose foods that fit your exchanges.
So what else can I eat?
That is your synthetic protein! It has all the building blocks your body needs to grow, without phenylalanine. It is also packed full of vitamins and minerals.
My parents make me drink that special shake every day. What is in it?
It can be at first, but you will get used to it with help from the metabolic team. Taking your synthetic protein and sticking to your low-protein diet keeps your brain and body healthy.
It sounds like a lot to remember.
Exactly! With the right foods and your synthetic protein, you can do all the things you love, school, sports, playing with friends, everything!
So if I follow my diet, I’ll be okay?
Thanks, Doctor. I feel way better now.
You’re welcome! See you next time in clinic.
The END
Welcome!
Metabolic Dietitians
Created on November 5, 2025
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Transcript
Welcome!
Welcome to this short story about PKU.Before you start...
This activity includes voiceovers. Please make sure your sound is on and click the speaker icon on each slide to listen. 👉 Click the arrow to begin.
What is PKU?
Hi there! PKU stands for phenylketonuria. It means your body has trouble breaking down part of the protein in food. This part is called phenylalanine or phe for short.
Hi, Doctor. My parents said I have something called PKU. What does that even mean?
You can eat some, but only a small amount. People with PKU need to be careful with how much protein they get from food. To replace the protein you don't get from food, you can take your synthetic protein.
So… I can’t eat protein?
Good question! Protein helps your body grow strong. It builds muscles, helps protect you from illnesses, and helps you recover if you have been unwell.
Why is protein important?
You get some of your protein from your synthetic protein- that is why taking it every day is so important! The rest of your protein comes from food, the amount depends on how many exchanges you are on.
Where do I get my protein from?
There are lots of tasty low-protein foods ! Fruits, veggies, and special low-protein foods. Your dietitian can help you choose foods that fit your exchanges.
So what else can I eat?
That is your synthetic protein! It has all the building blocks your body needs to grow, without phenylalanine. It is also packed full of vitamins and minerals.
My parents make me drink that special shake every day. What is in it?
It can be at first, but you will get used to it with help from the metabolic team. Taking your synthetic protein and sticking to your low-protein diet keeps your brain and body healthy.
It sounds like a lot to remember.
Exactly! With the right foods and your synthetic protein, you can do all the things you love, school, sports, playing with friends, everything!
So if I follow my diet, I’ll be okay?
Thanks, Doctor. I feel way better now.
You’re welcome! See you next time in clinic.
The END