Activity_report_24-25

Activity Report

2024-2025

Message from management

Catherine Wilhelmy

Partner Patient Co-director

These messages were generated using speech synthesis. The original recordings can be found in the French version of this report.

Antoine Groulx

Scientific Co-director

Rénald Breton

Director of Administrative Services

Priorities

2024-2025

Bridge between science, experiences, practices, and public policies

Scientific program 2024-2026

Projects to improve life trajectories

Primary Care

Provincial health priorities

Measurement of the quintuple aim

Governance

2024-2025 highlights

• Mission control room approach
• Development of the strategic planning (2024-2026)
• Writing of the CIHR annual report (2024-2025)
• Production of the financial annual report (2024-2025)
• Pursuit of the implementation of a project management approach
• Execution of internal projects prioritized within the framework of organizational health planning
• Redesign of the guideline on remuneration for patient partners
• Online launch of a portal for patient partners and unit members who mandate them
• Automation of the remuneration process

Performancedigital

The team

Budget

Support requests

+12

+11

patient partners

members of the steering committee

+28

+35

scientists

members of the partnership community table

+32

+300

project managers, professionals, and directors

Members of the provincial community partnership &

+40

indegenous partner circles

frq-Scholarship recipients

The Team

Digital performance

Budget

Support requests

2024-2025

VIDEOS

NEWSLETTER

TRAININGS

WEBSITE

SOCIAL MEDIA

392

46,225

1,563

21,639

3,000

subscriptions to the Experience community

registrations

views

unique visits

subscriptions

593

5,254

subscriptions

subscriptions to the Unit

The Team

Digital performance

Support Requests

Budget

RUISSS

IRSC

MSSS

FRQS

2 $M

5 $M

4 $M

1 $M

3 $M

2024-2025

10,930,317 $M

in money and in kind

The amounts are rounded

37

Others

The Team

Digital performance

Budget

Support requests

28

2024-2025

20

23

121

requests

13

Targeted grants

Ongoing programs

The Unit continued its participation in ongoing targeted grants with the MSSS and the FRQS:

• Major neurocognitive disorders
• Open area

patient projects

In partnership with the RUISSSs, the Unit deployed the PATIENTS program aimed at improving the trajectory in each of Quebec's RUISSS

2023

Teams and planning

PATIenTS Program

2024

4 concrete projects to improve life trajectories in Quebec

Trajectory selection

We co-created this program with our LHS teams, RUISSSs, and healthcare facilities to meet community needs. For what purpose?

2025

• Improve a life trajectory based on the needs and priorities of the relevant territorial network
• Enhance elements of the quintuple goal for each trajectory by applying an improvement methodology following several steps based on the LHS model

Trajectory improvements

2026+

Replication, scaling

PATIenTS project deliverables

See project sheets

2024-2025

• Training program to improve the practices of identification and assessment of individuals with mental health issues in family medicine groups (FMG)
• Guide on clinical assessment focused on mental health needs and recovery

• Leaflet to support patient autonomy
• Conversational robot to support parental autonomy during episodes of acute respiratory infection

• Pilot project aimed at integrating a life story book
• List of possible improvements to support the transition from home to residential care

• "I prepare myself" (JMP), a patient preparation sheet for consultation, in the digital pathway of GAP

Pan-Canadian Projects

SPOR Communities of Practice

Other SPOR Entities

Partners outside of SPOR

Achievements

2024-2025

TOOLS

NETWORKING

FACILITATION

CONSULTATION

TRAINING

Achievements

Tools

Access the toolkit

Family medicine groups GMF learning model

Continuous quality improvement Position statement

Patient partnership in research Microsite and interactive pathway

Learning health system approach Self-assessment of readiness level

Acute respiratory infections Self-management guide for patients

Health literacy Video capsules for better understanding (in French)

Scientific thinking Video capsules (in French)

Well-being of human resources in health and social services Evaluation approach

Organizational participative research Interactive guide

Medical-administrative co-management Interactive guide (in French)

Predictive models for personalized treatments MEDomicsLab platform

Work resilience in health and social services Guide and self-training modules (in French)

COVID-19 in rehabilitation settings Lessons learned infographic (in French)

Scaling health innovations Strategies derived from 9 real cases (in French)

Cultural safety in Indigenous health research Recommendations report

Engagement in health and social services Indicator framework (in French)

Scaling health innovations (potential evaluation) ISSaQ tool

Peer support Explainer infographic (in French)

Mental health clinical assessment Guideline (In French)

Transition between home and the CHSLD List of improvements

Partnership in health care facilities Overview (in French)

Patient-reported primary care experience Measurement tools directory (in French)

Integrated Practice Units Implementation guide (in French)

Health partnership Position statement

Consult the toolbox

Achievements

Skills development, training, and mentoring

Training

Scaling innovations LENGAGE and eLARGIE training (in French)

Patient partnership in CQI Training (in French)

" Midi Expériences " Public webinars (in French)

Learning platform Training catalog (find more content in the french catalog)

Mentoring

Equity, diversity, and inclusion Internal survey

FRQ scholarship cohort Practice community

Skills development

Research differently Video capsules (in French)

Indigenous health Training workshops

Inclusive careWebinar and field testimonials

Access the toolkit

Achievements

Consultation, facilitation, and networking

Continuous quality improvement (CQI) Ministerial mandate

Ethics approval versus CQI process Algorithm and discussions

Transparency and consent portal Parliamentary commission and living lab

Health and Social Services Governance Law 11 ministerial initiatives and 3 reports

LHS Leaders in RUISSSs Creation of 4 positions

TorSaDE Data Cohort Research community

Cultural safety in research Roundtable with Indigenous peoples

Partnership in health and social services Provincial forum (in French)

Effective strategies for implementing health innovations Event

Primary care Public consultation and forum

Consult the toolkit

Achievements

Continuous quality improvement

COMPAS+ and MPOC First group of the learning collaborative (in French)

CQI Community of Practice Annual day and revitalization

Facilitation for Family medecine groups CQI service offer

Practices facilitator expertise Development program

Implementation of the recommendations from the Position Statement on CQI Guidelines

Specialist doctors Training on CQI

FMG learner Introduction to foundations and co-management (in French)

8 objectives

Planning 2024-2026

Facilitate smooth and efficient data usage

Identify the priority needs of the health and social services network

Provide tools for governance of a learning health system

Document a project management methodology within a learning health system

Provide tools for mobilizing stakeholders, including clinical staff, in learning health system projects

Provide tools for implementing a learning health system, replicate, and scale innovations

Provide tools for measuring the achievement of the quintuple aim and impacts

Provide tools for defining and recognizing skills in a learning health system

In our sights for 2025-2026

New scientific direction

Launch of a LHS incubator

Position statement on data valuation at the forefront and living laboratory

Renewal of the Unit's mandate within SPOR

Trajectory improvement projects inspired by the PATIenTS program

Continuation of the CQI ministerial mandate

Better integration of EDI into our scientific programming

Guidelines to improve primary care and services

Indigenous health LHS project

Improve the management of patients living with chronic obstructive pulmonary disease with COMPAS+: an example (in French)

Multimedia

Scientific Watch on learning health systems

2024-2025

Learning pathw ay on patient, public, and organizational partnership in health and social services (in French)

The Unité de soutien SSA Québec.. in 3 minutes!

In the media

2024-2025

Podcasts / Videos

2024-2025

Healthcare innovation: drawing inspiration from New South Wales in Australia (in French)

What is a learning health system according to Dr. Antoine Groulx (in French)

Let's discuss compassion and humanism in health (in French)

"Midi expériences"

Public webinars offered by the provincial partnership community, Expériences, in 2024-2025.

Meeting with Dr. Alain Vadeboncoeur (in French)

Research in partnership with a citizen-researcher (in French)

Peer support in Eating Disorders (ED): a success case in France (in French)

A pathway towards research partnership (in French)

The mysteries of the healthcare system and patient partnership (in French)

Thank you!

We thank our entire team as well as our partners and collaborators for their commitment and expertise.

Aiming to support ethics committees and decision-makers in evaluating research projects using health data, we are working to clarify the distinction between a project requiring ethical approval and a CQI process that does not require ethical evaluation.

• An algorithm has been developed and will be validated with several stakeholders.

• Discussions regarding the ethical review of living laboratories are also ongoing with the MSSS.

Recent changes surrounding the creation of Santé Québec has added challenges related to this objective.

This year, we received a record number of 121 requests via the SSA Portal!

• Partnership is the most requested expertise
• 51% of requests concern partnership.

• Requests are often handled by the Experiences community that offers support.
• The profile of applicants is diversifying
• Although researchers remain the majority, their proportion is decreasing.
• We have noted an increase in requests at the national level, as well as some international requests.
• We observe a rise in requests from partners outside Quebec.
• The most requested services are partner patient recruitment and support letters.

Make a request

• The teams are almost complete
• The areas for improvement have been identified (1 per RUISSS)
• Action plans have been submitted

The Unit participated in numerous discussions, including a parliamentary commission on the use of health data in research and in continuous quality improvement (CQI). These discussions led to the adoption of a new law that should facilitate access to and use of data for research and CQI. Furthermore, the development of a specific platform has been put aside in favor of the Digital Health file development, which aims to incorporate several of the recommended elements by the Unit. The Unit is also working on establishing a living laboratory on data valorization at the frontline that will have the same goal as the transparency portal, namely the valorization of health data for the benefit of patients, clinical staff, and managers.

Discover the program

We organized various activities for the 2024-2025 cohort of scholars:

• Welcome Day
• Scientific day on the theme “Boosting your career”, including an Indigenous health workshop and a science communication contest.
• 5 lunchtime conferences
• 2 radiation contests, support in technopedagogy
• Private practice community gathering over 120 members

Several members of Unité de soutien SSA Québec participated in the eleven different projects of the Ministry of Health and Social Services (MSSS) for the deployment of Santé Québec and the implementation of the Law on Governance of the Health and Social Services System. Patient partners, researchers, and the scientific management of the Unit were able to hear and influence the various issues and solutions presented during this project. The three reports issued by the transition committee are available. These projects also highlighted the need to obtain recommendations on patient partnership. These were published in the form of a position statement, available on the Unit’s website.

The indigenous partner circles held three workshops on indigenous health with unit members.

Colleagues who joined the Unit this year

2024-2025

Team

Discover our members

Partners

Thanks to our collaborators

• Training offered as part of the Interdisciplinary Training Days.

• TorSaDE gets a new look: after an initial cohort covering up to 2016, TorSaDE 2.0 will offer updated data starting next year.
• 5 new support requests have been made for TorSaDE 1.0 (requests for data access assistance, information, or support for grant applications).
• Number of teams part of the TorSaDE Research Community: 14
• Number of institutions: 7
• Scientific articles: 32

Our Subcommittee on Equity, Diversity, Inclusion (EDI), and Gender Comparison Analysis has continued its consultation offering. To revitalize its activities, a survey conducted among the Unit teams revealed that (n=14): • 80% of teams have integrated EDI principles into their projects; • 60% have used an external resource to incorporate EDI; • 100% wish to receive relevant recommendations and tools.

• Annual event on CQI:
• 62 people attended
• Revitalization of the CQI practice community:
• 12 structuring and development activities

LENGAGE: Training on citizen participation in scaling (in French)

éLARGIE: Evaluation of the potential for scaling innovations in health and social services (in French)

As recommended by our partner table, we organized an event on effective strategies for implementing innovations in health. 1 event, 200 attendees, 9 scaling cases In March 2024, a two-day event brought together over two hundred people representing the health network, social services, the Treasury Board Secretariat, research, innovation offices, the innovation sector, healthcare personnel, the Ministry of Health and Social Services, and the private sector. The event program combined science and practice:

• Conferences on literature data related to scaling issues highlighted various elements to consider during this complex stage of an innovation's lifecycle.
• Workshops presented and discussed nine ongoing scaling cases.

The provincial community of patient partners Experiences brings together nearly 300 members who are involved

• in more than 70 provincial, national, and international organizations;
• in the 5 spheres of involvement.

Together, the members of the Assembly have accumulated over 100 years of collective experiential knowledge within the health network.

The partner circles are co-directed by Marie-Claude Tremblay (Canadian of colonial descent), Associate Professor in the Department of Family Medicine and Emergency Medicine at Laval University and Alex M McComber (Kanien’keha:ka (Mohawk)) from Kahnawà:ke, Assistant Professor of Family Medicine at McGill University. Find out more

• The teams are almost complete
• The trajectories to improve are identified (1 per RUISSS)
• Action plans are submitted

The teams have:

• Identified the trajectory to improve in collaboration with RUISSSs
• Mapped the actual and theoretical trajectories
• Identified gaps and possible improvements based on field data
• Made various progress, which vary depending on the projects

The teams have:

• Implemented their improvements and measured the concrete outcomes
• Started analyzing the potential for scaling up, with initial drafts of a plan to achieve it
• Reviewed the situation: through various workshops, the teams and the Unit assess the learnings and the impacts of the PATIenTS program

• The teams are almost complete
• The areas for improvement are identified (1 per RUISSS)
• Action plans are submitted

The teams have:

• Identified the area for improvement in collaboration with the RUISSSs
• Mapped the actual and theoretical trajectories
• Identified gaps and possible improvements based on field data
• Made various progress, which varies depending on the projects

Service offer in continuous quality improvement (CQI) for family medicine clinics and Family Medicine Groups (FMGs)

• 13 new projects launched in 2024-2025

• The teams are almost complete
• The trajectories to improve are identified (1 per RUISSS)
• Action plans are submitted

The teams have:

• Identified the trajectory to improve in collaboration with the RUISSSs
• Mapped the actual and theoretical trajectories
• Identified gaps and possible improvements based on field data
• Made various progress which vary depending on the projects

The teams have:

• Implemented their improvements and measured the concrete outcomes
• Started analyzing the potential for scaling up, which is taking shape, and drafted initial outlines of a plan to achieve it
• Reviewed the situation: through various workshops, the teams and the Unit assess the learnings and outcomes of the PATIenTS program

• The Unit will refine the LHS model based on learnings from the four projects of the PATIenTS program
• The teams are seeking partners to deploy their improvements beyond the studied regions
• The Unit leverages this experience to support continuous improvement of life pathways, in a LHS perspective