What people see
Fatigue
Frequent infections
Anxiety or depression
Side effects from treatments
What people don’t see
Feeling alone
Fear of hospitals
Mental overload from complex care
Fatigue
Fatigue is constant tiredness that can limit daily activities and can’t be resolved by rest alone. A member of myRAteam with PI shared, “So tired of fighting constant colds and sinus infections.”
Learn More
Mental overload from complex care
Life with PI can mean juggling specialists, medications, and side effects. A member of myRAteam said, “I have primary immunodeficiency disease. I just started treatment for RA two weeks ago and am finding it hard.”
Learn More
Fear of hospitals
Many with PI have had long hospital stays, intense treatments, or traumatic care episodes. “I was hospitalized three years ago with pneumonia and in ICU for almost five days,” one myT1Dteam member with PI shared.
Anxiety or depression
Living with PI can bring anxiety, sadness, and burnout from symptoms, uncertainty, and isolation. One member of myRAteam shared, “Mentally I’m just not doing well with it. I’m just getting tired of the fight.”
Side effects from treatments
Intravenous immunoglobulin (IVIG), antibiotics, and immunosuppressants can have side effects. A myRAteam member said, “Been on IVIG for four years. I just started treatment for RA and am finding it hard to balance the side effects from both.”
Learn More
Frequent infections
PI often causes colds, pneumonia, or sinus infections that don’t respond well to treatment. A member of MyLupusTeam said, “Fighting three infections, but I’ve been resting, eating well, and drinking lots of water.”
Learn More
Feeling alone
Many people with PI feel emotionally isolated because few truly understand what it means to manage a chronic illness every day.
Learn More
[PIDD-1] PIDD Iceberg
MyHealthTeam
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Transcript
What people see
Fatigue
Frequent infections
Anxiety or depression
Side effects from treatments
What people don’t see
Feeling alone
Fear of hospitals
Mental overload from complex care
Fatigue
Fatigue is constant tiredness that can limit daily activities and can’t be resolved by rest alone. A member of myRAteam with PI shared, “So tired of fighting constant colds and sinus infections.”
Learn More
Mental overload from complex care
Life with PI can mean juggling specialists, medications, and side effects. A member of myRAteam said, “I have primary immunodeficiency disease. I just started treatment for RA two weeks ago and am finding it hard.”
Learn More
Fear of hospitals
Many with PI have had long hospital stays, intense treatments, or traumatic care episodes. “I was hospitalized three years ago with pneumonia and in ICU for almost five days,” one myT1Dteam member with PI shared.
Anxiety or depression
Living with PI can bring anxiety, sadness, and burnout from symptoms, uncertainty, and isolation. One member of myRAteam shared, “Mentally I’m just not doing well with it. I’m just getting tired of the fight.”
Side effects from treatments
Intravenous immunoglobulin (IVIG), antibiotics, and immunosuppressants can have side effects. A myRAteam member said, “Been on IVIG for four years. I just started treatment for RA and am finding it hard to balance the side effects from both.”
Learn More
Frequent infections
PI often causes colds, pneumonia, or sinus infections that don’t respond well to treatment. A member of MyLupusTeam said, “Fighting three infections, but I’ve been resting, eating well, and drinking lots of water.”
Learn More
Feeling alone
Many people with PI feel emotionally isolated because few truly understand what it means to manage a chronic illness every day.
Learn More