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PICU PPI information booklet v3
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Transcript
GenOMICC children and young people
Patient and Public Involvement (PPI)
Welcome
We want to hear from you!
About GenOMICC
We want to talk to people about our research so we can make it better. If you have ever been very sick in hospital, you could help by telling us what you think about what we do and how we do it.
How it works
Our PPI policy
Contact us
We're also keen to hear from parents and loved ones, as being very sick affects everyone.
You don't need to have taken part in research before or have any special knowledge. We just want to have a friendly chat.
Get in touch and share your news
GenOMICC
Spring 2024
Patient and Public Involvement (PPI)
Welcome
We are a research study that recruits adults and young people in hospitals all over the UK
About GenOMICC
How it works
Our PPI Policy
We want to find the parts of DNA that explain why some people become very sick while others with the same illness do not. If we can find these important parts of DNA, we may be able to make new medicines and treatments to help very sick people.
Contact us
Click here to watch our video and find out more about GenOMICC
Get in touch and share your news
GenOMICC
Patient and Public Involvement (PPI)
Welcome
WE'LL SEND YOU A £25 VOUCHER TO SAY THANKS
Everyone is welcome
About GenOMICC
You might already be part of a group that helps researchers like us and your group will help to set up a chat with us.
How it works
Our PPI policy
Contact us
If you or your parents or guardians have heard about us another way, just get in touch and we can set something up.
During our chat, we might ask you questions about our study or what you think about us storing personal infomation about patients.
If there's anything you don't understand or you think isn't explained very well, no matter how small, let us know, so we can make it easier for others to understand in future.
Get in touch and share your news
GenOMICC
Patient and Public Involvement (PPI)
Your information: we might not need to collect your personal contact details if your PPI group is setting up our chat. If not, we will only collect your name and contact details so we can get in touch with you or your parents and guardians. Your details will always be safe, and we will never share them with anyone. We will delete your information if you want us to.
Welcome
About GenOMICC
How it works
Our PPI policy
Contact us
Shopping voucher: we will send you a £25 shopping voucher to say thank you for talking to us.
Help: if joining a chat or reading any forms we might share is hard, let us know and we will help you.
Get in touch and share your news
GenOMICC
Patient and Public Involvement (PPI)
Welcome
Contact us
About GenOMICC
How it works
Telephone: 0300 365 7660 Email: GenOMICC@roslin.ed.ac.uk Thank you for reading this booklet and we hope to talk to you soon.
Our PPI policy
Contact us
Get in touch and share your news
Charity registrationSC044017