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PICU PPI information booklet v3
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Created on October 10, 2024
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Transcript
You don't need to have taken part in research before or have any special knowledge. We just want to have a friendly chat.
We're also keen to hear from parents and loved ones, as being very sick affects everyone.
Get in touch and share your news
Contact us
Our PPI policy
How it works
Welcome
About GenOMICC
Patient and Public Involvement (PPI)
GenOMICC children and young people
We want to talk to people about our research so we can make it better. If you have ever been very sick in hospital, you could help by telling us what you think about what we do and how we do it.
We want to hear from you!
We want to find the parts of DNA that explain why some people become very sick while others with the same illness do not. If we can find these important parts of DNA, we may be able to make new medicines and treatments to help very sick people.
Click here to watch our video and find out more about GenOMICC
Get in touch and share your news
We are a research study that recruits adults and young people in hospitals all over the UK
Patient and Public Involvement (PPI)
Spring 2024
Contact us
Our PPI Policy
How it works
Welcome
About GenOMICC
GenOMICC
If there's anything you don't understand or you think isn't explained very well, no matter how small, let us know, so we can make it easier for others to understand in future.
During our chat, we might ask you questions about our study or what you think about us storing personal infomation about patients.
If you or your parents or guardians have heard about us another way, just get in touch and we can set something up.
You might already be part of a group that helps researchers like us and your group will help to set up a chat with us.
Get in touch and share your news
WE'LL SEND YOU A £25 VOUCHER TO SAY THANKS
Everyone is welcome
Patient and Public Involvement (PPI)
Contact us
Our PPI policy
How it works
Welcome
About GenOMICC
GenOMICC
Help: if joining a chat or reading any forms we might share is hard, let us know and we will help you.
Shopping voucher: we will send you a £25 shopping voucher to say thank you for talking to us.
Get in touch and share your news
Contact us
Your information: we might not need to collect your personal contact details if your PPI group is setting up our chat. If not, we will only collect your name and contact details so we can get in touch with you or your parents and guardians. Your details will always be safe, and we will never share them with anyone. We will delete your information if you want us to.
Patient and Public Involvement (PPI)
How it works
Welcome
About GenOMICC
Our PPI policy
GenOMICC
Charity registrationSC044017
Contact us
Contact us
Telephone: 0300 365 7660 Email: GenOMICC@roslin.ed.ac.uk Thank you for reading this booklet and we hope to talk to you soon.