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Transcript

Social Factors in Lupus

Racial Disparities Tied to Lupus

Georgia Lupus Data Collection

  • Hospitalizations/ER visits
  • Depression & Anxiety
  • Lupus and CVD flares/events
  • Unemployment or Work Disabilities
  • Physician Biases

All above symptoms disproportionately imact African Americans with Lupus

Social Community

Individual Stressors

LupusModeration

Final Outcomes

Neighborhood Social Cohesion, Opportunities, Material Deprivation

Discrimination,Mental Health, Healthcare Stigmatization

Medication, Access to care, Coping Mechanisms, Pain Relief

Disease Flare Ups, Quality of Life, Hospitalizations

Social Determinants of Health

Social determinants of health refer to the conditions in which people are born, grow, live, work, and age, Limited access to healthcare, lower income, and poor health literacy can lead to delays in diagnosis, inadequate treatment, and poor disease management. Stress from work or financial strain can exacerbate lupus and cardivascular disease.

In the PAST 7 DAYS, how often have you been bothered by emotional problems such as feeling anxious, depressed or irritable? OR In the PAST 7 DAYS... I felt worthless. I felt helpless. I felt depressed.

In the PAST 3 MONTHS, how much of a problem has each of the following symptoms been? Dark blue or purple spots you could feel on your skin Rash or feeling sick after going out in the sun Bald patches on scalp, or clumps of hair on pillow

Considering all my efforts and achievements, my salary / income is adequate. OR In the PAST 7 DAYS, how much did pain interfere with your ability to participate in social activities?

In the PAST 2 WEEKS, how often have you missed or forgotten to take your prescribed medications?

In the PAST 7 DAYS, how much did pain interfere with... your day to day activities? work around the home? your ability to participate in social activities? your household chores? OR In the PAST 7 DAYS, how would you rate your pain on average? On a scale from 0 (no pain) to 10 (worst imaginable pain),

How many people live in your home (including yourself, and excluding roommates and others unrelated to you)? OR Do you have someone to help you if you are confined to bed? Do you have someone to help with your daily chores if you are sick?

In the PAST 7 DAYS... I had difficulty falling asleep. My sleep was restless. I worried about not being able to fall asleep. OR During the PAST MONTH, other than for your regular job, did you participate in any physical activities or exercises such as gardening, sports, or walking?