Charge Syndrome BOCHURE

Characteristics/attributes

I.) Most individuals w/ CHARGE have a gap or hole in one of the structures of the eye (coloboma)- may impair vision II.) One or both nasal passages are narrowed (choanal stenosis) or completely blocked (choanal atresia), which can cause difficulty breathing III.) Middle & inner ear abnormailiaites- can contribute to hearing problems IV.) Crainal nerve abnormailiaties- certain cranial nerves can cause swallowing problems, facial paralysis, a sense of smell that is diminished (hyposmia) or completely absent (anosmia) VII.) Musclosketal anomalies (scoliosis)

What is CHARGE syndrome? CHARGE syndrome is a disorder that affects many areas of the body. The acronym for CHARGE: C- Colobomas (a hole in the structures of the eye) H-Heart defects A- Atresia of the nasal choanae (connection between the back of the nose and throat) R- Restriction of development G- Genitourinary abnormalities E- Ear and hearing anomalies (thus the acronym CHARGE)

CHARGE Syndrome

Adaptations/Modifications

Resources

Safety Concerns

I.) Various forms of verbal & non-verbal communication methods: gestures, simple signs, print/Braille, facial expression, symbols, and PECS (Picture Exchange Communication System); in addition to speech and sign language- can be used during delivering instruction and through activity, II.) Determine the communication bubble! [The communication bubble includes how far out and how well a child sees and how far out and how well a child hears. It also needs to take into account things like lighting, ambient noise and other factors. III.) If walking laps as a warm-up, have teacher assist student; possisbly end early if fatigued IV.) Repeat stated directions and give visual aid when delievery instruction V.) Modify equipment: lower weight objects (muscle weakness), oversized objects (visual impairment) VI.) Game modifications (i.e., modified soccer) VII.) Simplified instructions-give instructions in small, distinct steps

I.) Visual impairments- Use bright colored materials/objects, large objects during activity II.) Difficulty breathing- Limit high intensity activites/cardio III.) Difficulty hearing- Repeat instruction (face the student when speaking) IV.) Muscle weakness- Adjust (lower) the weight of equipment and objects planned for activity V.) Swallowing difficulties- Make sure student eat/drink in upright position

Educational needs of children with charge syndrome. (n.d.). Retrieved March 4, 2023, from https://www.chargesyndrome.org/wp-content/uploads/2016/03/11-Educational-needs.pdf Home. Cincinnati Childrens. (n.d.). Retrieved March 3, 2023, from https://www.cincinnatichildrens.org/health/c/charge-syndrome Muscles and bones - the charge syndrome foundation. (n.d.). Retrieved March 3, 2023, from https://www.chargesyndrome.org/wp-content/uploads/2016/05/Muscles-and-Bones.pdf U.S. National Library of Medicine. (n.d.). Charge syndrome: Medlineplus genetics. MedlinePlus. Retrieved March 3, 2023, from https://medlineplus.gov/genetics/condition/charge-syndrome/#:~:text=CHARGE%20syndrome%20is%20a%20disorder,genital%20abnormalities%2C%20and%20ear%20abnormalities.

Effective Teaching Strategy

Active vs Passive Learning: alternating activities between quiet (sitting-desk work) and movement oriented (physical activity)